Coalition Duchenne

New Trial for Duchenne Hearts

HOPE - DUCHENNE TRIAL

We are excited to be have been a part of this from the beginning. Thank you to Capricor for including Dusty in the video.
Capricor has now completed enrollment for the HOPE-Duchenne Trail. Dusty is not in the trial but he is so excited that our work with Dr Marban at Cedars Sinai is now moving closer to a therapy to help Duchenne hearts.

Read more here
09. 07. 2016

Good News for Duchenne Hearts.
04. 25. 2017

Duchenne Drug Approval Breakthrough FDA grants accelerated approval to first drug for Duchenne muscular dystrophy
09. 20. 2016

FDA grants accelerated approval to first drug for Duchenne muscular dystrophy

Coalition Duchenne announces its Outreach Initiative focused on helping pulmonary issues associated with Duchenne muscular dystrophy
09. 20. 2016

Hope - Duchenne Trial
09. 07. 2016

Coalition Duchenne features on CBS TV Courage in Sports, Nov 1st. See the trailer.
10. 26. 2015

New Trial for Duchenne Hearts
10. 25. 2015

Scaling Peaks in Europe and Borneo for Duchenne Muscular Dystrophy Awareness
05. 26. 2015

PTC Therapeutics Announces Launch of Translarna™ (ataluren) in Germany
12. 03. 2014

Phrixus Pharmaceuticals announces European Access program for Carmeseal
12. 02. 2014

Promising study for Duchenne hearts.
11. 18. 2014

Sarepta Therapeutics Announces First Confirmatory Study of Eteplirsen in Ambulant Patients
11. 18. 2014

Sarepta Therapeutics Announces First Patient Dosed in Study of Eteplirsen in Non-Ambulant Patients
11. 12. 2014

Award Winning Malaysian Filmmaker Climbs Mt. Kinabalu to Make a Difference for Sufferers of Rare Disease
06. 7. 2013

Coalition Duchenne funds a $150,000 research grant to investigate cardiac stem cells as a treatment for cardiomyopathy in Duchenne.
05. 29. 2013

Newport Beach Filmmaker Documents a Story Close to Her Heart in California and Malaysian Borneo
04. 10. 2013

Reel Critics: A rugged and inspiring 'Trail'
02. 28. 2013

Review of Dusty's Trail: Summit of Borneo
01. 26. 2013

Recent advances in Duchenne muscular dystrophy
10.11.2012

Award Documentary Film Crew to Film Mt Kinabalu Climb
08.17.2012

Malaysia Shows Its Compassion and Helps Move Towards a Cure For Duchenne Muscular Dystrophy
07.31.2012

Malaysian Media
08.05.2012

Phrixus Pharmaceuticals
07.19.2012

Founder, Cath Jayasuriya, interviewed on Malaysian TV.
06.22.2012

Expedition Mt Kinabalu 2012 Press Release
05.21.2012

Teens Climbing For A Cure
04.30.2012

CheckOrphan Press Release
04.20.2012

What We Are Funding
04.17.2012

Duchenne Alliance News
04.03.2012

Jon Hastie, Duchenne Activist
04.06.2012

Expedition Mt Kinabalu, 2012

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